I owned The Huntington's Disease Support Club & devoted my life to providing online support, creating awareness & raising funds for this devastating disease that killed my husband until my retirement in 2014. I was a Senior Regional Advocate for the We Have A Face organisation working on "The Faces of Huntington's Disease: I am No Longer a Faceless Face" - a documentary exploring the many aspects of the disease until my retirement in 2015.

I am an identical twin & we were honoured to feature in the BBC documentary "The Secret Life of Twins" initially aired in the UK in autumn 2009, and were interviewed live on BBC Breakfast and had our story featured in The Mail on Sunday, as well as other national & local media including a live interview on BBC Radio Kent. We're volunteers at TwinsUK contributing to their research for many years.

Since becoming an orphan in 2012, I have become increasingly involved in genealogy research, both as an indexer of historical documents to facilitate people's ability to do research online, and as a researcher of my own family history. I was also a volunteer at the National Archives.

I owned The Huntington's Disease Support Club & devoted my life to providing online support, creating awareness & raising funds for this devastating disease that killed my husband until my retirement in 2014. I was a Senior Regional Advocate for the We Have A Face organisation working on "The Faces of Huntington's Disease: I am No Longer a Faceless Face" - a documentary exploring the many aspects of the disease until my retirement in 2015.

I am an identical twin & we were honoured to feature in the BBC documentary "The Secret Life of Twins" initially aired in the UK in autumn 2009, and were interviewed live on BBC Breakfast and had our story featured in The Mail on Sunday, as well as other national & local media including a live interview on BBC Radio Kent. We're volunteers at TwinsUK contributing to their research for many years.

Since becoming an orphan in 2012, I have become increasingly involved in genealogy research, both as an indexer of historical documents to facilitate people's ability to do research online, and as a researcher of my own family history. I was also a volunteer at the National Archives.